What are the Secrets?
Remeber when you were a child? or even as an adult, did you keep secrets? We all did. You know, don’t tell what the gift is, or if you tell someone isn’t going to believe you! Maybe it was a surprise visit from grandma.
According to Webster Dictionary, a secret is That which is not known; hidden from others and doesn’t want others to know. To me, that sounds just like Fibromyalgia! Those of us who suffer from this disease, know we do not always tell others we have it. We are tired of trying to explain what it is, how it affects our daily lives, so we keep our secrets.
What are Fibromyalgia Secrets?
Let’s take a look at what makes us be so quiet about our health issues. Maybe by realizing what the hush is all about we can start to help others understand.
- Lack of sleep
- Intimacy/sensitivity to touch
- Brain Fog
- Environment sensitivity
- Muscle spasms
You have forgotten when your last pain-free day was. When Fibromyalgia pain is severe, it might be tough for you to think clearly. Whether it is the pain, the fatigue or the brain fog associated with flare-ups, fibromyalgia symptoms can send you spiraling into stress and despair if you aren’t prepared. You feel pain in your muscles, joints, along with stomach and bowels. You also may have daily headaches. Don’t fall into the game of comparing your pain to others. Pain comparison with other fibro sufferers can lead to discomforts from self-esteem issues and depressive states to misplaced anger and nagging doubt.
Lack of Sleep
So you want to just pull the bed covers back over your head. The thought of getting up or even moving makes you tired. Sleep is something that only happens in short periods, sometimes a couple of hours other times maybe just one hour here or there. Lack of being able to sleep will enhance your ability to do the daily task. Getting dressed. Fixing your hair or putting on makeup, all seem to be beyond your ability some days.
Even a little less sleep — losing just 2 hours if you usually snooze 8 hours a night — can make you groggy and affect concentration and memory. This may make you less skilled at work — or worse, behind the wheel of your car.
Tests done in sleep labs show that people with fibromyalgia are constantly interrupted by bursts of brain activity similar to what happens in the brain when they’re awake. These interruptions limit how much time you spend in the deep sleep when your body restores itself, and you feel run down as a result.
Intimacy/Sensitivity to Touch
No, you are not crazy. It does hurt when someone or even your spouse, reach to give you a hug. You want to be intimate but your muscles and joints think otherwise. It isn’t that you do not want to be touched. It is your trigger points cannot take the pressure.
With fibromyalgia, you may also face challenges in your sex life. You could be experiencing loss of libido or having difficulty with sexual performance. It’s also possible your libido is healthy, but the deep muscle pain and stiffness of fibromyalgia keep you from enjoying sex the way you used to.
This was a BIG one for me. I could not seem to function without feeling stupid like no one really cared or if I was really going crazy. The anxiety at times was overwhelming. According to Web MD Fibro and depression go together.
The stress from fibromyalgia’s pain and fatigue can cause anxiety and social isolation. The chronic deep muscle and tender point pain can result in less activity. That causes you to become more withdrawn and can also lead to depression. It is also possible that anxiety and depression are part of fibromyalgia, just like the pain.
Depression and fibromyalgia can greatly interfere with the way you manage your activities at home or at work. So it is important to openly discuss any symptoms of depression you have with your doctors.
What is Brain Fog? A symptom commonly referred to as “fibro fog” impairs the ability to focus, pay attention and concentrate on mental tasks. It causes us to forget the simplest of things we need to remember. Names of friends, address or phone numbers and even what day it is. Take a walk, listen to soft music, just relax. Worrying about why you can’t remember will cause you more stress.
Light. Do you have problems seeing at night? Do the lights from oncoming traffic hurt your eyes? What about the bright sunlight? Yes, these are all signs of Fibromyalgia. You can be hot one minute and be freezing the next. You wear a coat when others just have a sweater on. People look at you like you are silly to dress like you do. If it is getting ready to storm outside, the pressure change can trigger a flare-up.
Do you sometimes have muscles that tighten up and won’t relax no matter what you do? That’s called a muscle spasm, and a lot of people with fibromyalgia have this problem. In fact, some researchers consider it a major source of our pain.
Spasms are different from muscle twitches, which are brief and usually painless. When a muscle spasms, it clenches tight and stays that way. It can take hours to days to get relief.
A condition called myofascial pain syndrome (MPS) can develop in someone with multiple active trigger points. MPS is extremely common in people with fibromyalgia and some doctors believe they’re actually the same condition.
So what is next?
Break the secrets of Fibromyalgia. Take time to educate your self and others on the facts about Fibromyalgia. Do not expect people to just understand. They won’t. We need to be proactive. Take time every day to rejuvenate yourself. Even just a quick walk around the block or a few minutes in a quiet place can make a big difference in how you feel.
Share your feelings. Join social media groups where you can discuss and interact with others who are going through what you are feeling. Don’t just lock yourself out. You must find a mental place that gives you peace of mind. For me, that is my belief in God. I know many people think this is crazy but without my daily devotions, bible reading and listening to Christian radio, I would be at a loss. I can focus on God and know that He understands when no one else does.
What is your Fibro Secrets? Share them with me. Let me help you through the bad and good days of living with Fibromyalgia. Sign up now and get started on a new day in your life.
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